Autisim Awareness Day

Our Riley was diagnosed with Phelan-McDermid Syndrome when she was nearly 3. After months of doctor appointments and hospital visits, we finally had answers to why she never spoke, walked so late, and all the other struggles she dealt with. It was a hard truth. Phelan-McDermid is a deletion of the q portion of her 22nd chromosome. It is an extremely rare condition that only 300 people worldwide have been diagnosed with. Since it is so rare, there is very little research available.  It leaves her severely mentally impaired, unable to speak, and autistic. Since it is chromosomal, there is no "cure". Her diagnosis brought a level of despair I had never experienced before. I always joked that I was God's favorite child, because He had always blessed me so richly and given me every desire of my heart. Her condition rocked me and my faith to the very core. I cried for the ordinary dreams and the big dreams I had for her, the vision that "I" had for her life.  She would never play video games, beg for a cell phone, argue with me over makeup, go to the prom, learn to drive a car, go on dates, football games, play sports like our other children. She would never get married, or give us grandchildren. She would never live independently and require care for the rest of her life. Dreams lost.

After months of raging at God, crying everyday and feeling sorry for myself, I confronted my own sin. I had to readjust my own expectations and look at Riley as He sees her. She is His child. Her soul was crafted by Him, her very life brought forth for His glory. She is not perfect? Says who? She has an innocence and an unawareness of sin that I am envious of. She shrieks with happiness at the mundane. Her brothers chasing her, Daddy walking in the door,  eating her beloved gummy snacks, playing with balls, and riding in the car. The simple, the everyday joys that are overlooked by most. 

I had to find new joys, new dreams, new expectations. She will never be addicted to Minecraft (I'm looking at you Justin), no cell phone bills, no silly teenage fights or, drama (I'm looking at you twins!) no crashing my car (I'm looking at you Taylor) no stomping away in frustration over a lost ball game (looking at you Sam) LOL!!  She is the daughter we will never have to "give away" in marriage, she will forever be our babygirl. Most importantly, and without a doubt, her eternity is held and secured by our Savior. I don't have to go to Him in prayer daily over her salvation. She is His. 

It is still so very hard some days. When I see how independent and beautiful her big sisters are, I get a stab of pain. When I see other 11 year-old girls giggling over Justin Bieber, and clothes, I get that familiar ache. In those times, I know I am being "Me-centered" not "God-centered", I am having a short-term view of life and not an eternal vision. 

THIS life, in THIS body, on THIS earth is but a vapor.  She is impaired HERE. She will be whole and complete in heaven. She cannot speak HERE, she will sing praises and shout His name forever in heaven. Her body is broken HERE. She will have a new and perfect body in heaven. She has taught me to have an eternal vision. To trust in the Lord for my own salvation, that I may one day join her in sky, to hear her speak, to know her thoughts, to be found worthy of her love. 

The Pursuit of a Family Easter Picture

Yesterday was a beautiful celebration of our Savior. I was one happy mommy to have all my babies under one roof. 

Our church has a tradition for families to take pictures in front of a beautifully decorated cross after Easter services. Well, after a long day in Sunday school, and waiting in line to actually take pictures, Riley (our Silent Princess) was not feeling it! She had a seat on the ground. LOL! We ended up with this:

Not acceptable! So we head out and I yell at everyone to NOT CHANGE CLOTHES when we get home! We must try again. (um....I am slightly obsessive about my pictures!) I set up the tripod in our front yard and Riley decides she is not interested in a photoshoot and she runs away, so no Riley-Roo in this picture.

This time, Brendon bribes her with some Gummy snacks and he gets her to sit on his lap for a few seconds. Yay!! Our family Easter portrait is done! LOL....Only took yelling, running and a little bribery to get 'er done!

The grave is empty.....He is not here. He is Risen! Praise the Lord for His many blessings.

Official 2012 Christmas Photo

Why does EVERYONE say, "Wow, this year has flown by?" um....they say it because it is TRUE! lol At least I got our picture in under the wire this year. I actually really like it. Christian's "mean-mugging" face cracks me up. 

Halloween 2012

This little cutie was the "Joker" last night. 

After we got his makeup on, he went and looked at himself in the mirror and got scared! LOL

He is still my baby......

First Date

When I was pregnant with our 4th baby, Brendon and I decided not to find out the sex. Since we already had 3 girls at that point, we decided we could only make girls and accepted our fate. LOL

Well, imagine our surprise when sweet, little Justin arrived. It was the first time Brendon cried in the delivery room. (In his defense, I was screaming rather loudly during labor with our first, and he passed out cold, literally, when the twins were born! LOL)

When Justin was two years old, he told me I would always be his "girlfriend". Well, that sweet, baby boy turned 14 before we knew it, and this past weekend he went on his first date to the Homecoming dance. 

This was my favorite picture and it just tugs at my heart. His date is a sweet, beautiful girl, but I hope he remembers that I was his first love.

Wordless Wednesday

Remembering how amaze-balls San Diego was last week. Sigh........ 

Color Me Scrappy

Color Me Scrappy is up with a new challenge. This month's palette is a wonderful, neutral color combo. I found it so easy to work with. 

I chose my papers based on the colors, but as I design,  I end up adding, subtracting, shifting, moving etc....so it never ends up like I pictured originally! lol

I used some October Afternoon, Crate Paper, a bit of Lawn Fawn washi tape, Studio Calico wood veeners (obsessed with those!)some stitching and called it DONE! Pretty easy page, and only took about an hour start to finish.

The "Cherish" is a Cricut cut that I cut out a LONG time ago and never used. But it seemed to work here.

Now off to scrap the rest of the "First Day of School" pictures.